(84) Navigating Pain with Color: A Sickle Cell Action Plan

Title: Please see below

Abstract : At Joe DiMaggio Children’s Hospital, patients with sickle cell disease often faced inconsistent pain management. Families and patients reported confusion about when to visit the Emergency Department or how to use medications effectively.

The goal of this program was to standardize pain management through a visual tool that empowers families and helps patients take ownership of their pain control.

The tool, developed with input from patients, families, and Hematologists, uses a color-coded system with four zones: green for mild, yellow for moderate, and red for severe pain as well as a blue zone for preventative everyday care. Each non-blue zone provides specific interventions, along with information on potential side effects of pain medications. It also includes guidance on when to contact a physician or visit the hospital. This tool is reviewed with patients and families upon discharge, ensuring full understanding. An electronic version is also being integrated into discharge summaries for easier reference.

Since its implementation, the pain care plan has standardized both pharmacological and non-pharmacological interventions. Families and patients now use the tool to determine appropriate next steps before heading to the Emergency Department. Patients report feeling more educated and confident in managing their pain. A reduction in Emergency Department visits is anticipated, along with increased confidence in parental decision-making.